Brain Injury Resources
Brain Injury Association of America (BIAA)
The mission of the Brain Injury Association of America is to advance brain injury prevention, research, treatment and education and to improve the quality of life for all people affected by brain injury. The BIAA offers a multitude of educational and informational support. 800-444-6443; biausa.org
Cerebral Palsy Group
The organization of the Cerebral Palsy Group is dedicated to improving the overall quality of life for individuals with cerebral palsy. The foundation provides free educational information and support to those who have been affected by cerebral palsy and other developmental disabilities. Cerebral Palsy Brain Group: Brain Injury
Coping with Traumatic Brain Injury: One Woman’s Journey from Death to Life by Patti Foster; BookJolt, 2013.
In the split second it took for a semi to slam into the back of the SUV Patti Foster was riding in, her world changed. Her life, in fact, almost ended that night. Miraculously, she survived, but her ordeal had just begun. After weeks in a coma, she woke up to an existence she couldn’t comprehend or even begin to understand. As a traumatic brain injury survivor, today she shares her story in the hope it will inspire and help other brain-injury victims, their friends and families. Also available as audiobook.
Confronting Traumatic Brain Injury: Devastation, Hope, and Healing by William Winslade; Yale University Press, 1998.
William Winslade presents facts about traumatic brain injury; information about its financial and emotional costs to individuals, families, and society; and key ethical and policy issues. This book explains what TBI is, how it is caused, and what can be done to treat, cope with, and prevent it.
Defense and Veterans Brain Injury Center (DVBIC)
The DVBIC provides medical care, an education center, and clinical research to support and strengthen military personnel who have suffered brain injury. dvbic.org
Head Cases: Stories of Brain Injury and Its Aftermath by Michael Paul Mason; published by Farrar, Strauss, & Giroux; 2009.
Mason takes you to the darker side of the brain using strange but true stories from those with brain damage. An exploration of the brain and its mysteries underlies each story. On the road with Mason, we encounter survivors of brain injuries as they struggle to map and make sense of the new worlds they inhabit.
Head Injury: The Facts (Second Edition) by Dorothy Gronwall, Philip Wrightson, and Peter Waddell; Oxford University Press, 1998.
These three New Zealand doctors have written an extensive guide for survivors, families and care-givers of brain-injury survivors. They include effects, recovery stages, procedures and techniques, as well as long-term management and rehabilitation adjustments.
Head Injury: The Facts: A Guide for Families and Caregivers (The Facts Series) by Dorothy Gronwall, Philip Wrightson, and Peter Waddell; Jan 2, 1992
I Am the Central Park Jogger: A Story of Hope and Possibility by Trisha Meili; Scribner, 2003.
Meili tells us who she was before the attack — a young Wall Street professional with a promising future — and who she has become: a woman who learned how to read, write, walk, talk, and love again…and turn horrifying violence and certain death into extraordinary healing and victorious life.
Over My Head: A Doctor’s Own Story of Head Injury from the Inside Looking Out by Claudia Osborn; Andrews McMeel Publishing, 2000
“One woman comes to terms with the loss of her identity and the courageous steps (and hilarious missteps) she takes while learning to rebuild her life” following a traumatic brain injury.
Rights Come to Mind: Brain Injury, Ethics, and the Struggle for Consciousness 1st Edition by Joseph J Fins; Cambridge University Press, 2016.
Drawing upon over fifty in-depth family interviews, the history of severe brain injury from Quinlan to Schiavo, and his participation in landmark clinical trials, such as the first use of deep brain stimulation in the minimally conscious state, Joseph J. Fins captures the paradox of medical and societal neglect even as advances in neuroscience suggest new ways to mend the broken brain…Fins places society’s obligations to patients with severe injury within the historical legacy of the civil and disability rights movements, offering a stirring synthesis of public policy and physician advocacy.
The Vow: The True Events that Inspired the Movie by Kim and Krickitt Carpenter and Dana Wilkerson; B&H Books, 2012.
Weeks after a horrific car crash, Krickitt Carpenter wakes up from a coma to discover a husband she no longer recognizes. But Kim sticks with her during her long recovery, giving them time to fall in love all over again. Not because he’s a hero but because he made a vow.
The quarterly published newsletter made available by the Virginia Commonwealth University TBI Model System. Its features include: Model System project updates, profiles of provider agencies and faculty, along with survivor “tips,” FAQs, advice column, events calendar, and a fun activity. model.tbinrc.com/newsletters
My Stroke of Insight: A Brain Scientist’s Personal Journey by Jill Bolte Taylor, Ph.D.; Plume Publishing, 2009
On December 10, 1996, Jill Bolte Taylor, a thirty-seven- year-old Harvard-trained brain scientist experienced a massive stroke in the left hemisphere of her brain. As she observed her mind deteriorate to the point that she could not walk, talk, read, write, or recall any of her life-all within four hours-Taylor alternated between the euphoria of the intuitive and kinesthetic right brain, in which she felt a sense of complete well-being and peace, and the logical, sequential left brain, which recognized she was having a stroke and enabled her to seek help before she was completely lost. It would take her eight years to fully recover.
Hope after Brain Injury is a non-profit organization devoted to sharing hope with those affected by brain injury by offering counseling, education, and connection to community resources. We are involved with brain injury survivors and their caregivers, along with healthcare professionals, committed to the advancement of brain injury recovery. Visit hopeafterbraininjury.org